Learning to Live in Holland
This is our story, raw, honest, and still unfolding. We’re sharing our journey raising Grace, a child with KIF1A Associated Neurological Disorder. Inspired by Emily Perl Kingsley’s poem Welcome to Holland, this space holds the real moments, the hard, the beautiful, and everything in between. My hope is to bring awareness, help others understand, and remind families like ours that they are not alone. There is so much strength here. There is resilience. There is love - even on the hardest days. This is a place where the hard parts can be spoken, and where the small victories, growth, and joy are seen and celebrated. Please click below to read the poem that started it all.
Understanding KAND: Grace's Journey with KAND
Grace’s Journey with KAND is our family’s real-life “Holland”—unexpected, hard, beautiful, and full of love. Here, we share what KIF1A Associated Neurological Disorder means for Grace and for us, in simple, honest words. Our hope is to raise awareness, offer understanding, and help other families feel a little less alone.
A candid moment of pure joy and connection.